THE AKARI FOUNDATION · PUERTO RICO

Akari Puerto Rico

Our Puerto Rico chapter was created to bring information, resources and gathering spaces closer to individuals and families living with neuromuscular diseases, strengthening our community and building connections that go beyond borders.

AKARI IN ACTION

Recent events

Take a look at some of the events and activities we have been part of recently.

Akari Contigo 2026
Akari Viaja

Akari Contigo 2026

San Juan, Puerto RicoMarch 14–15, 2026

💙✨ Así vivimos nuestro Encuentro Anual – Akari Contigo 2026 14 y 15 de marzo. San Juan, Puerto Rico Compartimos algunos de los momentos especiales que vivimos durante este hermoso encuentro

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Taller Presencial San Juan
Taller

Taller Presencial San Juan

San Juan, Puerto RicoApril 5, 2025

📚💙 In-person Workshop in San Juan A day to learn together about Duchenne: care, treatments and available resources, with time to ask questions in person. Thank you to every family who joined us and shared their experience. Together we are stronger!

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Festival Familiar 2025
Festival

Festival Familiar 2025

San Juan, Puerto RicoAugust 9, 2025

🎈👨‍👩‍👧‍👦 Family Festival 2025 A day full of games, smiles and time together for the whole family, designed so every child and young person could join in and have fun. It was a special chance to meet, share and strengthen the bonds of our Akari community in Puerto Rico.

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Taller Presencial Ponce 2024
Conferencia

Taller Presencial Ponce 2024

Ponce, Puerto RicoApril 27, 2024

📚💙 In-person Workshop in Ponce 2024 We brought information and guidance about Duchenne to the south of the island, so more families can access resources in their own community. Thank you, Ponce, for welcoming us so warmly and for every question that enriched the conversation.

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Caminata Camina o Rueda por Duchenne 2024
Evento

Caminata Camina o Rueda por Duchenne 2024

Ponce, Puerto RicoSeptember 7, 2024

🚶‍♂️♿ “Walk or Roll for Duchenne” 2024 Walking or rolling, families, friends and volunteers came together to raise awareness about Duchenne muscular dystrophy. Every step and every turn of a wheel was a message of hope: no one walks alone in this fight.

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Taller Presencial San Juan 2023
Taller

Taller Presencial San Juan 2023

Ponce, Puerto RicoSeptember 7, 2023

📚💙 In-person Workshop in San Juan 2023 One of our first workshops on the island: a space to learn about Duchenne, understand recommended care and connect with other families. This gathering marked the start of a journey we keep walking together in Puerto Rico.

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Reencuentro Amigos de Akari San Juan 2023
Akari Viaja

Reencuentro Amigos de Akari San Juan 2023

Ponce, Puerto RicoSeptember 7, 2023

🤝💙 Friends of Akari Reunion in San Juan 2023 We gathered again with the families and friends who are part of Akari to share, catch up and celebrate what we have built together. Because more than a foundation, we are a family.

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Join us

Join us at the next Akari event

Every webinar, workshop and gathering is a chance to learn, get your questions answered and connect with other families who understand your journey. We'd love to see you there!

Stay informed

Understanding the condition is the first step to better care

Understanding Duchenne helps you make better decisions, ask your care team the right questions and plan ahead for each stage. We offer free guides and tools in Spanish for you and your family.

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