Akari memories

Our story in Puerto Rico

Every gathering, workshop and walk has left its mark on our community. Here we keep every moment we have shared on the island since 2023.

Events
7
Photos
119
Cities
2

2026

  1. March 14–15, 2026San Juan, Puerto Rico

    Akari Contigo 2026

    💙✨ Así vivimos nuestro Encuentro Anual – Akari Contigo 2026 14 y 15 de marzo. San Juan, Puerto Rico Compartimos algunos de los momentos especiales que vivimos durante este hermoso encuentro

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2025

  1. August 9, 2025San Juan, Puerto Rico

    Festival Familiar 2025

    🎈👨‍👩‍👧‍👦 Family Festival 2025 A day full of games, smiles and time together for the whole family, designed so every child and young person could join in and have fun. It was a special chance to meet, share and strengthen the bonds of our Akari community in Puerto Rico.

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  2. April 5, 2025San Juan, Puerto Rico

    Taller Presencial San Juan

    📚💙 In-person Workshop in San Juan A day to learn together about Duchenne: care, treatments and available resources, with time to ask questions in person. Thank you to every family who joined us and shared their experience. Together we are stronger!

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2024

  1. September 7, 2024Ponce, Puerto Rico

    Caminata Camina o Rueda por Duchenne 2024

    🚶‍♂️♿ “Walk or Roll for Duchenne” 2024 Walking or rolling, families, friends and volunteers came together to raise awareness about Duchenne muscular dystrophy. Every step and every turn of a wheel was a message of hope: no one walks alone in this fight.

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  2. April 27, 2024Ponce, Puerto Rico

    Taller Presencial Ponce 2024

    📚💙 In-person Workshop in Ponce 2024 We brought information and guidance about Duchenne to the south of the island, so more families can access resources in their own community. Thank you, Ponce, for welcoming us so warmly and for every question that enriched the conversation.

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2023

  1. September 7, 2023Ponce, Puerto Rico

    Taller Presencial San Juan 2023

    📚💙 In-person Workshop in San Juan 2023 One of our first workshops on the island: a space to learn about Duchenne, understand recommended care and connect with other families. This gathering marked the start of a journey we keep walking together in Puerto Rico.

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